Conference Agenda

Statement from the conference organisers,

20th March 2020: COVID-19 (Coronavirus)

The 2020 International Conference has been cancelled. 

Please read the statement on our home page.


We are delighted that Prof Elena Levtcheko of KU Leuven will be the international chair for the 2020 Conference.  Prof Atif Awan of Children's University Hospital, Dublin, will be the local chair. 

Details of the agenda can be found by clicking here.


Please note that on rare occasions speakers may change from those listed here.  We will give as much notice of such changes as possible.


We are also looking forward to sharing a full programme (both seminars and social!) for our adolescents (13-17 years) and young adults (18-25 years) who attend.   


We will have language interpretation services in all of the plenary sessions of the conference.  Daytime childcare will also be available to allow parents and carers attend sessions with more ease. 

For children

Daytime childcare will be provided for the conference with activities and fun. 

For young people

 Dedicated programmes will be available for adolescents (12-17 years) and young adults (18-25 years).

For adults

Workshops on specific problems with cystinosis in adults and an entertaining evening programme.

For parents

"New" and more experienced parents will be able to engage and learn about living with cystinosis. Networking and peer to peer support will be part of the social and formal programmes in a supportive and friendly environment. 

For scientists
and clinicians

Exchange and network with the opportunity to meet your colleagues and your patients.  There will be opportunities to discuss and present the latest research and best clinical practice in the field. 

Dublin Cystinosis Workshop

The 6th Dublin Cystinosis Workshop will be held in conjunction with the International Conference.  This meeting for researchers, clinicians and other healthcare professionals will take place on 9th July in the conference hotel. Click here.