Conference Agenda

We are delighted that Prof Elena Levtcheko of KU Leuven will be the international chair for the 2020 Conference.  Prof Atif Awan of Children's University Hospital, Dublin, will be the local chair. 

We are working on the agenda at the moment and look forward to sharing it as speakers are confirmed. 


We are also looking forward to sharing a full programme (both seminars and social!) for our adolescents (13-17 years) and young adults (18-25 years) who attend.  We will post details of all elements of the agendas as they are confirmed. 


We will have language interpretation services in all of the plenary sessions of the conference.  Daytime childcare will also be available to allow parents and carers attend sessions with more ease. 

For children

Daytime childcare will be provided for the conference with activities and fun. 

For young people

 Dedicated programmes will be available for adolescents (12-17 years) and young adults (18-25 years)

For adults

Workshops on specific problems with cystinosis in adults and an entertaining evening programme

For parents

"New" and more experienced parents will be able to engage and learn about living with cystinosis. Networking and peer to peer support will be part of the social and formal programmes. 

For scientists
and clinicians

Exchange and network with the opportunity to meet your colleagues and your patients.  There will be opportunities to discuss and present the latest research and best clinical practice in the field.