The International Cystinosis Conference went online on Saturday 25th April!


1 day - 8 languages - 15 speakers - 20 time zones - 49 countries - 900+ registered attendees!  Thank you to all who joined us.

The Virtual International Cystinosis Conference was a first for the global cystinosis community



We would like your feedback - click here for details

For the conference agenda and speaker details click here.


Please contact with any queries. 

Cead Mile Failte! Welcome!



Research | Education | Support



Without funding and donations this conference could never take place.
We would like to thank all our supporters.


Proudly hosted by Cystinosis Ireland