European Cystinosis Conference 2020      in Dublin

People with cystinosis grow up –  what comes next?

The main theme of the conference is Growing Up with Cystinosis – The Opportunities and The Challenges. With current treatment children with cystinosis grow up to become adults with cystinosis – let us work together for further positive development.

At the conference, doctors and researchers will present their latest findings. Patients and families meet, exchange, learn as well as educate.

Come – Network – Listen – See – Speak – Experience


We look forward to seeing you in Dublin, from 10th to 12th July 2020


We are working on our registration form and will post it and hotel details in the coming weeks. 

The challenge

People living with cystinosis and their families, will come to Dublin to meet each other, clinicians and researchers.

Clinicians and researchers can meet cystinosis patients and get a real-life understanding of the implications of the disease. 

Exchanging ideas creates a better understanding of cystinosis.

The agenda

The agenda offers something for everybody  – whether children, adolescents, adults, parents, doctors and researchers.  We are working on the agenda and will update it here when it is finalised.  We are planning sessions for young people, adults, families, parents and our research and medical colleagues.  There will also be time to catch up with friends and to take part in the social programme!

The location - Dublin

We are looking forward to offering you a cead mile failte in Dublin in July!  We have selected beautiful family friendly hotel beside the sea with great transport links to the airport, city centre, and all the sightseeing and travel opportunities you could enjoy.

Without funding and donations this conference could never take place.
We would like to thank all our donors.