European Cystinosis Conference 2020      in Dublin

People with cystinosis grow up –  what comes next?

The main theme of the conference is Growing Up with Cystinosis – The Opportunities and The Challenges. With current treatment children with cystinosis grow up to become adults with cystinosis – let us work together for further positive development.

At the conference, doctors and researchers will present their latest findings. Patients and families meet, exchange, learn as well as educate.

Come – Network – Listen – See – Speak – Experience

Register today for YOUR suggestions, ideas and questions to be heard!

We look forward to seeing you in Dublin, from 10th to 20th July 2020

The challenge

People living with cystinosis meet each other, they speak with doctors and researchers.

Doctors meet cystinosis patients and talk to them face to face on equal footing.

Exchanging ideas creates a more common understanding about cystinosis.

This is the plan

The agenda offers something for everybody  – whether children, adolescents, adults, parents or doctors.

Please read the final programme here.

There is lots on the agenda and yet still time for private moments.

Evening programme for adolescents and young adults!

The location - Berlin

Berlin is always worth a journey!    
The conference hotel Moven-pick is located in Berlin city centre.
We provide the opportunity to explore the city a little bit. Let us inspire you with ideas and suggestions.

Sightseeing and experiencing Berlin is simply a must!


Without funding and donations this conference could never take place.
We would like to thank all our donors.